I have a rare auto-immune disease that requires high (160mg 2x day) dose prednisone to stop a severe blistering of mucosal tissue ., 2-3 degree burns of mouth, throat, sinus, eyes and even my heart. The possibility of this disease killing me without prednisone is real and my doctor explained that prior to prednisone a great majority of people with Erythema Multiforme – Major died.
So what’s the problem? Over many years and a dozen high dose treatments with prednisone I have been 302 committed and upon release my doctors where cautioned about this therapy.
During my most recent treatment, I went into a manic state or worse. I was PFA’d and removed from my home by police after scaring my wife and kids. I had to finish treatments at the hospital and I requested a psychological evaluation because I hadn’t slept in 5 days, almost lost my job, and was was manic or worse. After a discussion with a psychiatrist he added several different mood stabilizers and anti psychotic meds. I have come off the prednisone and the pshyc meds are taking effect. I cant wait until prednisone is out of my system.
My doctor now realizes after this last event a new protocol is being thought out with future treatments.
This I can tell you without a doubt in my mind that Prednisone is a miracle and a curse all rolled up into one medicine. If you are experiencing mental issues with prednisone tell your doctor immediately, insist on getting psychiatric support and PRAY.
"For years I had been a "junkie"--addicted to prescription and over the counter drugs. used oral and topical anti-inflammatory corticosteroids for 9 years to suppress my eczema/psoriasis. The steroids' side effect nearly killed me and did nothing to cure my eczema. The side effects caused me to swell-up like a balloon and triggered terrible mood swings from deep depression to nasty outburst our rages. Functioning of vital organs such as my liver, kidneys, lungs and spleen were nearly shut down and I thought I would die." Shirley
Answer – Mike:
I know it was the drugs that caused this to happen and I don’t care what anyone says. All the gurus and self proclaimed steroid experts who try to down play the risks are talking out there asses. They have no idea what will happen to people. Nobody in my family EVER had heart problems it WAS the steroids I took. Anytime you put an artificial drug in your body your takin’ a chance. Most guys think nothing will ever happen to them just watch I bet we will be seeing more serious heart problem and worse when they get to their 40’s.